Who We AreWe Are
We are advocates, partners and collaborators who are relentless in our efforts to affect change. Vertical Divider
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Why We Do ItWe Do It
To eliminate the daily challenges for 1 in 10 people affected by rare disease. Vertical Divider
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What We DoWe Do
We empower patients, build communities & drive forward momentum for rare disease globally. |
Annual Walk For PKUThe City Of Pearland has giving us the opportunity to have a PKU Float during the City’s Christmas Parade. One mile walk to raise awareness of PKU. Each year we find angels during our walk who come in the form of chefs, nurses, doctors, and just people wanting to change Amberly’s life and all those living with PKU. If you are interested in walking with us or helping us build our float please send us a message below!
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2017 PKU Float |
2018 PKU Float |
2019 PKU Float |
2021 PKU Float |
2023 PKU FLOAT |
Our First Mission Trip In 2019 |
2020 Mission Trip |
This year we were blessed to have the opportunity to do a presentation about PKU and the treatment to the Ministerio De Salud Publica.
One Step At A TIME!
One Step At A TIME!
Mission Trips To Ecuador
Each year we have our annual mission trip to Ecuador. Ecuador added the PKU test to the newborn screening just 5 years ago. There are less than 40 patients diagnosed with PKU. The PKU formula is not available for immediate distribution to the patients and some do not have formula for several months. Today the blood test to manage PKU is only available to the patients one a year and at best twice a year. There are needs everywhere in the world but with your help we can save one brain at a time. Donate TODAY!
city of pearland proclamations and 1st gala
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