Burrows Hill Foundation
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THE BURROWS HILL FOUNDATION TO FIGHT FRIEDREICH'S ATAXIA WELCOMES YOU
MAKE A DIFFERENCE TODAY
The Burrows Hill Foundation to Fight Friedreich’s Ataxia was established to raise public awareness of FA, to raise money for research to find a cure for FA and assist those affected by FA. We are a 501(c)(3).
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WHO WE ARERolf Hill and Katie Burrows are the proud parents of three amazing daughters who seemed limited only by their imaginations – spirited, empathetic and intellectually curious. But when Rolf and Katie became concerned about their oldest daughter’s decrease in coordination and balance, it led to a November 2015 diagnosis they never expected for a disease they had never heard of – Friedreich’s Ataxia (FA). A rare, debilitating, life-shortening, degenerative neuro-muscular disease that affects 1 in 50,000 people, FA threatens an uncertain future. Symptoms include a loss of coordination (Ataxia) in arms and legs, energy deprivation and muscle loss, slurred speech, vision impairment and hearing loss, aggressive scoliosis, serious heart conditions and diabetes.
Less than one year later, and now with the experience and ability to see the most minimal indications of FA, Rolf and Katie grew similarly concerned about their youngest daughter. In October 2016, genetic testing confirmed that she also has FA. While each of their daughters is strong in spirit, they know that there is much work to be done. With immeasurable and unwavering support from their friends and families, Rolf, Katie and their girls are committed to helping other families better understand FA and find a cure.
With ongoing clinical trials, hope in the FA community has never been greater. Doctors and researchers no longer say “if we find a cure,” they say “when we find a cure.” Rolf, Katie and their daughters would be forever grateful for your help in finding a cure! |
PAST EVENTS
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A NIGHT TO FIGHT - 2024
The Burrows Hill Foundation had yet another incredible event. With help from our amazing friends and family, the foundation has now contributed over $1,000,000 to FA research. This was the first event after the first treatment for FA was approved and made available by the FDA, a milestone that was reached through the kindness and generosity of everyone who has supported us and FARA. |
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A NIGHT TO FIGHT - 2023
April 2023 A Night to Fight FA was another fantastic night, and as a result the Burrows Hill Foundation has contributed an additional $150,000 to FARA for continued FA research. Thank you to everyone for your support, we are incredibly appreciative. During this event, we were able to share with our guests the exciting news of the first ever FDA approved treatment for FA. |
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A NIGHT TO FIGHT - 2022
April 2022 After a two-year hiatus due to COVID, the Burrows Hill Foundation was finally able to hold its fourth event. With the help of so many friends and family members, this event helped the Burrows Hill family raise over $200,000! The Burrows Hill Foundation was able to provide an update on the current drug development pipeline and promising news about the current stage of FA research. |
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A NIGHT TO FIGHT - ROUND 3
April 2019 So many community members, teachers, friends and neighbors came to show their love and support for the Burrows Hill family! This event raised over $122,000 to help fight FA. Jen Farmer, Executive Director of FARA, offered her expert insights into the field of research going on and the hope that families have for curing this rare disease. |
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A NIGHT TO FIGHT - ROUND 2
April 2018 Over 300 friends and family raised $150,000 to help increase FA awareness and fund research to find a cure for FA. Together We Can Cure FA! Founder and director of rideATAXIA, Kyle Bryant, spoke about the experience of riding across America and crossing the finish line in Annapolis. Kyle is a tireless advocate for FA. |
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A NIGHT TO FIGHT
April 2017 Friends and community members of the Burrows Hill family came together to raise over $100,000 for our first event! Special guest, Ron Bartek, President/Director/Co-Founder of FARA, shared his passion for working with the FA community and raising awareness about the research being done to find a cure. |
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RIDE ATAXIA
Every October Each October, the Burrows Hill family rides to raise awareness and funds for FA research in beautiful Blue Bell, PA. Consider joining us! Click here for more information! |
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